Our Children’s Heart Center team treats your child and offers you peace of mind, whether your child has a mild form of Ebstein’s anomaly or a more serious one. Our pediatric cardiology specialists are prepared to make an accurate diagnosis. And we offer the best possible treatment for your child. At all times throughout your child’s care, our doctors keep you in the know about what’s going on and what to expect.
Ebstein’s anomaly is a rare congenital heart condition (present at birth) that affects the right side of the heart. When a child has Ebstein’s anomaly, the tricuspid valve (located between the right upper and right lower chambers of the heart) is not able to do its job—managing the flow of blood from the heart’s right upper chamber (atrium) to the right lower chamber (ventricle). Ebstein’s anomaly occurs when the leaflets (thin pieces of tissue or flaps) of the tricuspid valve are not formed normally and are in the wrong position. The results cause leaking of blood backwards (regurgitation) from the right ventricle into the right atrium.
In addition to Ebstein’s anomaly, it is possible that your child’s heart may have other defects (such as an atrial septal defect) or an abnormal heart beat from an electrical problem in the heart. Our pediatric cardiology specialists will get the full picture during our diagnostic process and develop a treatment plan for your child.
The symptoms of Ebstein’s anomaly depend on the age of your child and the severity of the defect. Mild Ebstein’s anomaly may produce little or no symptoms. However, infants with severe defects can have dangerously low oxygen levels or poor circulation. This may make your child look pale or blue, or have trouble breathing.
In older children and adults, the symptoms of Ebstein’s anomaly may be:
Through ultrasound imaging during pregnancy, we may be able to diagnose Ebstein’s anomaly before your baby is born. We may also diagnose the condition after birth. In either case, we will carefully evaluate your child and help you decide next steps. Your child’s diagnostic work-up may include:
In mild cases of Ebstein’s anomaly, no treatment may be necessary. In serious cases, we may use medication to relieve some symptoms. The only way to fix Ebstein’s anomaly is through one of the following surgical procedures:
Following treatment, we work with you to create a long-term care plan for your child’s lifetime. Lifelong care and follow-up will be necessary to monitor your child’s health. We will check how your child’s valve and heart function.
Children’s Heart Center is an alliance between Mount Sinai and Children’s Hospital of Philadelphia (CHOP). This innovative alliance brings together the expertise of two world-leading institutions for the best possible outcomes. Together, we offer the most effective treatment and compassionate cardiac care for your child here in New York City.
The Children’s Heart Center has doctors and nurses who are dedicated to providing the most personalized and expert care for your child with congenital heart disease, including Ebstein’s anomaly, at any age. We involve you, parents and family, as we use our expertise for diagnosis and treatment with the most effective minimally invasive techniques.
We are here for you and your child for life.