Cardiac Amyloidosis Registry Study

ID#: NCT05174338

Age: 18 years - 66+

Gender: All

Healthy Subjects: No

Recruitment Status: Enrolling by invitation

Start Date: January 08, 2020

End Date: December 01, 2025

Summary: This registry is a observational, multi-center study designed to collect data and analyze it retrospectively on patients with cardiac amyloidosis who have been evaluated and treated at major amyloid centers across the US and internationally between 1997 and 2025.
Eligibility:

Inclusion Criteria:

- Established diagnosis of AL or TTR cardiomyopathy identified or treated within the timeframe

- Specific to CSMC: If the individual provided consent while they were alive, and if sufficient information exists in their chart, their data will be included.

- Information on deceased individuals may be included, but only with the appropriate approval from the external site IRB and/or according to the federal regulations for the protection of human subjects.

Exclusion Criteria:

- At Cedars-Sinai, records that specifically state not to be used in research will not be accessed. Patients who have enacted a No Research Flag or are noted as "Break the Glass" will not be included. For external sites, records that indicate No Research Flag or are noted as "Break the Glass" may be included based on institutional policies and appropriate approvals, as applicable.
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