Patient Can Walk, Hike, Bike Again Through Mount Sinai NeuroAids Program
Nine years ago I developed neuropathy in my feet and was told it was caused by Zerit, the HIV medication I had been taking. The Zerit was discontinued with the assurance that the neuropathy would fade and disappear in about two years. However, that didn't happen.
In fact, it slowly worsened until about a year ago it started to make any walking difficult. That moved to another phase, where I could not walk on any uneven surface and could not tell where my feet were going unless I watched every step. Eventually I needed a cane to move about, and even that barely kept me steady. I had to stop constantly to keep from losing my balance and hold on to something stationary, like a lamppost or railing.
Further tests disclosed that I was suffering from chronic inflammatory demyelinating polyneuropathy (CIDP). My doctors at Mount Sinai advised treatment with intravenous immunoglobulin (IVIg), and I was admitted to the hospital.
After three treatments there seemed to be no real improvement, and I was told that I would need to use a walker, possibly permanently. After two more treatments I went home and began to feel a big improvement. In a few weeks serious symptoms resurfaced, though, and I was readmitted for another series of five treatments. Huge improvement after that. Now my neurologists set up home treatments for two days every three weeks.
This has literally changed my life. I no longer have balance problems, and I can take long walks and bike rides. I just had a two-hour hike on the Palisades and generally feel better than I have in years. It is like a miracle for me.
Tel: 800-MD-SINAI (800-637-4624)
Jessica Robinson-Papp, MD
David M. Simpson, MD