Pulmonary Fibrosis/Interstitial Lung Disease Program

The Pulmonary Fibrosis/Interstitial Lung Disease Program treats patients with pulmonary fibrosis (IPF), interstitial lung disease (ILD), collagen vascular-associated pulmonary diseases, Hermansky-Pudlack Syndrome, histiocytosis X, tuberous sclerosis, LAM, glycogen storage disease (Gauchers), secondary pulmonary hypertension, and stage IV sarcoidosis. All of these patients require intensive medical attention, close follow-up, and other extensive services, which will lead to:

• Improved outcome/survival for patients with IPF and ILD
• Improved quality of life and increased patient satisfaction by meeting their medical, as well as psychosocial needs
• Collaboration with the Palliative Care Service

Also planned are a Visiting Doctor Program and other services, including pathology, radiology, cardiothoracic surgery, cardiology, and, most importantly, lung transplantation. A patient support group is being formed for families and friends, as well as for patients.