Scleroderma - resources
Resources - scleroderma
Counselors sometimes work with a group of people (support group) to help identify problem issues and direct members towards understanding and personal wellness.
Information
The following organizations are good resources for information on scleroderma:
- Genetic and Rare Diseases Information Center --
rarediseases.info.nih.gov/diseases/9748/systemic-scleroderma - National Institute of Arthritis and Musculoskeletal and Skin Diseases --
www.niams.nih.gov/health-topics/scleroderma - National Organization for Rare Disorders --
rarediseases.org/rare-diseases/scleroderma/ - Scleroderma Foundation -
scleroderma.org - Scleroderma Research Foundation --
srfcure.org/ - US National Library of Medicine, Genetics --
medlineplus.gov/genetics/condition/systemic-scleroderma/